Channel 4 really pull out some crackers sometimes. True, it was morbid, and maybe a touch voyeuristic, but The Boy Whose Skin Fell Off showed the last 4 months of Jonny’s life, as he courageously battled an awful skin condition that developed into cancer. He had a ball though – planegliding, hosting a houseparty, even visiting 10 Downing Street. He was also the narrator – and was all the more moving as he had the amazing prescience to narrate his own funeral. Humourous, uplifting, courageous and even to the end raising money for his charity DEBra – there was a big man inside that distorted body.
“People, even in this day and age, are still frightened about death. They won’t talk about it and it’s such a shame because it’s part of life. So, why not organise it like you would organise an anniversary or a birthday? Let’s get it right.”